Your doctor’s visit isn’t private

Published July 26, 2025 – By Naomi Brockwell

A member of our NBTV members’ chat recently shared something with us after a visit to her doctor.

She’d just gotten back from an appointment and felt really shaken up. Not because of a diagnosis, she was shaken because she realized just how little control she had over her personal information.

It started right at check-in, before she’d even seen the doctor.
Weight. Height. Blood pressure. Lifestyle habits. Do you drink alcohol? Are you depressed? Are you sexually active?
All the usual intake questions.

It all felt deeply personal, but this kind of data collection is normal now.
Yet she couldn’t help but wonder: shouldn't they ask why she’s there first? How can they know what information is actually relevant without knowing the reason for the visit? Why collect everything upfront, without context?

She answered every question anyway. Because pushing back makes people uncomfortable.

Finally, she was through with the medical assistant’s questions and taken to the actual doctor. That’s when she confided something personal, something she felt was important for the doctor to know, but made a simple request:

"Please don’t record that in my file".

The doctor responded:

"Well, this is something I need to know".

She replied:

"Yes, that’s why I told you. But I don’t want it written down. That file gets shared with who knows how many people".

The doctor paused, then said:

"I’m going to write it in anyway".

And just like that, her sensitive information, something she explicitly asked to keep off the record, became part of a permanent digital file.

That quiet moment said everything. Not just about one doctor, but about a system that no longer treats medical information as something you control. Because once something is entered into your electronic health record, it’s out of your hands.

You can’t delete it.

You can’t restrict who sees it.

She Said "Don’t Write That Down." The Doctor Did Anyway.

Financially incentivized to collect your data

The digital device that the medical assistant and doctor write your information into is called an Electronic Health Record (EHR). EHRs aren’t just a digital version of your paper file. They’re part of a government-mandated system. Through legislation and financial incentives from the HHS, clinics and hospitals were required to digitize patient data.

On top of that, medical providers are required to prove what’s called “Meaningful Use” of these EHR systems. Unless they can prove meaningful use, the medical provider won’t get their Medicare and Medicaid rebates. So when you're asked about your blood pressure, your weight, and your alcohol use, it’s part of a quota. There’s a financial incentive to collect your data, even if it’s not directly related to your care. These financial incentives reward over-collection and over-documentation. There are no incentives for respecting your boundaries.

You’re not just talking to your doctor. You’re talking to the system

Most people have no idea how medical records actually work in the US They assume that what they tell a doctor stays between the two of them.

That’s not how it works.

In the United States, HIPAA states that your personally identifiable medical data can be shared, without needing to get your permission first, for a wide range of “healthcare operations” purposes.

Sounds innocuous enough. But the definition of health care operations is almost 400 words long. It’s essentially a list of about 65 non-clinical business activities that have nothing to do with your medical treatment whatsoever.

That includes not just hospitals, pharmacy systems, and insurance companies, but billing contractors, analytics firms, and all kinds of third-party vendors. According to a 2010 Department of Health and Human Services (HHS) regulation, there are more than 2.2 million entities (covered entities and business associates) with which your personally identifiable, sensitive medical information can be shared, if those who hold it choose to share it. This number doesn’t even include government entities with access to your data, because they aren’t considered covered entities or business associates.

Your data doesn’t stay in the clinic. It gets passed upstream, without your knowledge and without needing your consent. No one needs to notify you when your data is shared. And you're not allowed to opt out. You can’t even get a list of everyone it’s been shared with. It’s just… out there.

The doctor may think they’re just "adding it to your chart". But what they’re actually doing is feeding a giant, invisible machine that exists far beyond that exam room.

We have an entire video diving into the details if you’re interested: You Have No Medical Privacy

Data breaches

Legal sharing isn’t the only risk of this accumulated data. What about data breaches? This part is almost worse.

Healthcare systems are one of the top targets for ransomware attacks. That’s because the data they hold is extremely valuable. Full names, birth dates, Social Security numbers, medical histories, and billing information, all in one place.

It’s hard to find a major health system that hasn’t been breached. In fact, a 2023 report found that over 90% of healthcare organizations surveyed had experienced a data breach in the past three years.

That means if you’ve been to the doctor in the last few years, there’s a very real chance that some part of your medical file is already floating around, whether on the dark web, in a leaked ransomware dump, or being sold to data brokers.

The consequences aren’t just theoretical. In one high-profile case of such a healthcare breach, people took their own lives after private details from their medical files were leaked online.

So when your doctor says, “This is just for your chart,” understand what that really means. You’re not just trusting your doctor. You’re trusting a system that has a track record of failing to protect you.

What happens when trust breaks

Once you start becoming aware of how your data is being collected and shared, you see it everywhere. And in high-stakes moments, like a medical visit, pushing back is hard. You’re at your most vulnerable. And the power imbalance becomes really obvious.

So what do patients do when they feel that their trust has been violated? They start holding back. They say less. They censor themselves.

This is exactly the opposite of what should happen in a healthcare setting. Your relationship with your doctor is supposed to be built on trust. But when you tell your doctor something in confidence, and they say, “I’m going to log it anyway,” that trust is gone.

The problem here isn’t just one doctor. From their perspective, they’re doing what’s expected of them. The entire system is designed to prioritize documentation and compliance over patient privacy.

Privacy is about consent, not secrecy

But privacy matters. And not because you have something to hide. You might want your doctor to have full access to everything. That’s fine. But the point is, you should be the one making that call.

Right now, that choice is being stripped away by systems and policies that normalize forced disclosure.

We’re being told our preferences don’t matter. That our data isn’t worth protecting. And we’re being conditioned to stay quiet about it.

That has to change.

So what can you do?

First and foremost, if you’re in a high-stakes medical situation, focus on getting the care you need. Don’t let privacy concerns keep you from getting help.

But when you do have space to step back and ask questions, do it. That’s where change begins.

  • Ask what data is necessary and why.
  • Say no when something feels intrusive.
  • Let your provider know that you care about how your data is handled.
  • Support policy efforts that restore informed consent in healthcare.
  • Share your story, because this isn’t just happening to one person.

The more people push back, the harder it becomes for the system to ignore us.

You should be able to go to the doctor and share what’s relevant, without wondering who’s going to have access to that information later.

The exam room should feel safe. Right now, it doesn’t.

Healthcare is in urgent need of a privacy overhaul. Let’s make that happen.

 

Yours In Privacy,
Naomi

 

Naomi Brockwell is a privacy advocacy and professional speaker, MC, interviewer, producer, podcaster, specialising in blockchain, cryptocurrency and economics. She runs the NBTV channel on Rumble.

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Breakthrough could give China unlimited nuclear energy

Published November 15, 2025 – By Editorial staff

The Shanghai Institute of Applied Physics, a Chinese research institute, has successfully converted thorium into uranium in an experimental reactor, enabling nearly unlimited access to nuclear energy.

The two-megawatt molten salt reactor is the world's only functioning facility of its kind.

The experiment has, according to the Chinese Academy of Sciences, demonstrated that thorium-based technology is technically feasible in molten salt reactors and represents a significant breakthrough. It is the first time researchers have been able to collect experimental data from thorium operation in such a reactor, reported the newspaper Science and Technology Daily.

The reactor has produced heat through nuclear fission since reaching criticality on October 11, 2023, according to Li Qingnuan, party secretary and deputy director at the institute.

Superior fuel availability

Thorium exists in much larger quantities and is more readily available than uranium. A single mining waste site in Inner Mongolia is estimated to contain enough thorium to supply all of China with energy for over a thousand years.

The new technology is based on a process where naturally occurring thorium-232 is converted into uranium-233 inside the reactor core. Thorium-232 absorbs a neutron and becomes thorium-233, which then decays into protactinium-233 and finally into uranium-233 – a fissile material that can sustain nuclear reactions.

The thorium is dissolved in a fluoride salt that forms a high-temperature molten mixture which functions as both fuel and coolant. The system creates a self-sustaining cycle where the reactor "breeds" fuel while simultaneously producing energy.

Requires no water cooling

Unlike conventional reactors, the thorium reactor requires no water at all for cooling, allowing it to be located in dry inland areas. The molten fluoride salts efficiently transfer heat at atmospheric pressure and extreme temperatures.

Safety is, according to the developers, significantly higher than in traditional reactors because the system operates at atmospheric pressure, eliminating the risk of high-pressure explosions. In the event of a leak, the molten salt would flow into a passive collection tank where it would solidify.

The reactor reached full power in June 2024, and in October of the same year, the world's first experiment with adding thorium to a molten salt reactor was conducted. China is now building a 100-megawatt demonstration reactor in the Gobi Desert with the goal of proving the technology is commercially viable around 2035.

Watch as Russia’s AI robot falls on stage

Published November 13, 2025 – By Editorial staff

Russia's first humanoid AI robot fell on stage during its official launch in Moscow this week. Staff rushed forward to shield the damaged robot while attempting to fix the malfunction.

What was meant to be a grand launch of Russia's venture into humanoid robotics ended in embarrassment. To the sounds from the Rocky film, the robot AIdol was led onto the stage by two staff members at a technology event in the Russian capital.

But the presentation ended in chaos when the robot lost its balance and crashed to the ground. Several parts came loose and staff hurried to pull the machine away and hide it behind a screen.

Behind the project is the Russian robotics company Idol, led by Vladimir Vitukhin. According to the company, AIdol is an advanced robot built mostly from domestic components.

Vitukhin explained the fall as a calibration problem and emphasized that the robot is still in the testing phase.

This is real-time learning, when a good mistake turns into knowledge, and a bad mistake turns into experience, Vitukhin said, according to Newsweek.

Despite the company's attempts to downplay the incident, criticism has been massive on Russian tech forums and social media. Many question the decision to showcase an obviously unfinished prototype.

AIdol is powered by a 48-volt battery that provides up to six hours of operation. The machine is equipped with 19 servo motors and a silicon skin designed to recreate human facial expressions.

The robot can smile, think, and be surprised – just like a person, Vitukhin said.

According to reports, AIdol consists of 77 percent Russian-produced components. After the fall, developers have withdrawn the machine while engineers examine the balance systems.

Italian political consultant became victim of spyware program

Totalitarianism

Published November 11, 2025 – By Editorial staff
Francesco Nicodemo.

An Italian political advisor who worked for center-left parties has gone public about being hacked through an advanced Israeli-developed spyware program. Francesco Nicodemo is the latest in a growing list of victims in a spyware scandal that is shaking Italy and raising questions about how intelligence services use surveillance technology.

Francesco Nicodemo, who works as a consultant for left-leaning politicians in Italy, waited ten months before publicly disclosing that he had been targeted by the Paragon spyware program. On Thursday, he chose to break his silence in a post on Facebook.

Nicodemo explained that he had previously not wanted to publicize his case because he "didn't want to be used for political propaganda," but that "the time has now come".

"It's time to ask a very simple question: Why? Why me? How is it possible that such a sophisticated and complex tool was used to spy on a private citizen, as if he were a drug dealer or a subversive threat to the country?", Nicodemo wrote. "I have nothing more to say. More people must speak out. Others must explain what happened".

Extensive scandal grows

Nicodemo's revelation once again expands the scope of the ongoing spyware scandal in Italy. Among those affected are several journalists, migration activists, prominent business leaders, and now a political consultant with a history of working for the center-left party Partito Democratico and its politicians.

The online publication Fanpage reported first that Nicodemo was among the people who received a notification from WhatsApp in January that they had been targeted by the spyware program.

Questions about usage

Governments and spyware manufacturers have long claimed that their surveillance products are used against serious criminals and terrorists, but recent cases show that this is not always the case.

— The Italian government has provided certain spyware victims with clarity and explained the cases. But others remain disturbingly unclear, says John Scott-Railton, a senior researcher at The Citizen Lab who has investigated spyware companies and their abuses for years.

None of this looks good for Paragon, or for Italy. That's why clarity from the Italian government is so essential. I believe that if they wanted to, Paragon could give everyone much more clarity about what's going on. Until they do, these cases will remain a burden on their shoulders, adds Scott-Railton, who confirmed that Nicodemo received the notification from WhatsApp.

Intelligence services' involvement

It is still unclear which of Paragon's customers hacked Nicodemo, but an Italian parliamentary committee confirmed in June that some of the victims in Italy were hacked by Italian intelligence services, which report to Prime Minister Giorgia Meloni's government.

In February, following revelations about the first victims in Italy, Paragon severed ties with its government customers in the country, specifically the intelligence services AISE and AISI.

The parliamentary committee COPASIR later concluded in June that some of the publicly identified Paragon victims, namely the migration activists, had been legally hacked by Italian intelligence services. However, the committee found no evidence that Francesco Cancellato, editor of the news site Fanpage.it which had investigated the youth organization of Meloni's governing party, had been hacked by the intelligence services.

Paragon, which has an active contract with the U.S. Immigration and Customs Enforcement agency, states that the U.S. government is one of its customers.

FACTS: Paragon

Paragon Solutions is an Israeli cybersecurity company that develops advanced spyware for intelligence services and law enforcement agencies. The software can be used to monitor smartphones and other digital devices.

The company was acquired by American private equity giant AE Industrial and has since been merged with cybersecurity firm REDLattice. Paragon's clients include the US government, including the Immigration and Customs Enforcement (ICE) agency.

In February 2024, Paragon terminated its contracts with Italian intelligence services AISE and AISI after several Italian citizens, including journalists and activists, were identified as victims of the company's spyware.

Paragon is marketed as a tool against serious crime and terrorism, but its use in Italy has raised questions about whether the spyware is also being used against political opponents and journalists.

Email was never built for privacy

Mass surveillance

How Proton makes email privacy simple.

Published November 8, 2025 – By Naomi Brockwell

Email was never built for privacy. It’s closer to a digital postcard than a sealed letter, bouncing through and sitting on servers you don’t control, and mainstream providers like Gmail read and analyze everything that is inside.

Email isn’t going anywhere in our society, it’s baked into how the digital world communicates. But luckily there are ways to make your emails more private. One tool that you can use is PGP, which stands for “Pretty Good Privacy”.

PGP is one of the oldest and most powerful tools for email privacy. It takes your message and locks it with the recipient’s public key, so only they can unlock it with their private key. That means even if someone intercepts the email, whether it’s a hacker, your ISP, or a government agency, they see only scrambled text.

Unfortunately it is notoriously complicated. Normally, you’d have to install command-line tools, generate keys manually, and run cryptic commands just to send an encrypted email.

But Proton Mail makes all of that easy, and builds PGP right into your inbox.

How Proton makes PGP simple

Proton is a great, privacy-focused email provider (and no they’re not sponsoring this newsletter, they’re simply an email provider that I like to use).

If you email someone within the Proton ecosystem (ie send an email from one Proton user to another Proton user), your email is automatically end-to-end encrypted using PGP.

But what if you email someone outside of the Proton ecosystem?

Here’s where it would usually get tricky.

First, you’d need to install a PGP client, which is a program that lets you generate and manage your encryption keys.

Then you’d run command-line prompts, choosing the key type, size, expiration, associating the email you want to use the key with, and you’d export your public key. It’s complicated.

But if you use Proton, they make using PGP super easy.

Let’s go through how to use it.

Automatic search for public PGP key

First of all, when you type an email address into the “To” field in Proton Mail, it automatically searches for a public PGP key associated with that address. Proton checks its own network, your contact list, and Web Key Directory (WKD) on the associated email domain.

WKD is a small web‑standard that allows someone to publish their public key at their domain in a way that makes it easily findable for an email app. For example if Proton finds a key for a certain address at the associated domain, Proton will automatically encrypt a message with it.

If they find a key, you’ll see a green lock next to the recipient in the ‘To’ field, indicating the message will be encrypted.

You don’t need to copy, paste, or import anything. It just works.

Great, your email has been automatically encrypted using PGP, and only the recipient of the email will be able to use their private key to decrypt it.

Manually uploading someone’s PGP key

What if Proton doesn’t automatically find someone’s PGP key? You can hunt down the key manually and import it. Some people will have their key available on their website, either in plain text, or as a .asc file. Proton allows you to save this PGP key in your contacts.

To add one manually, first you type their email address in the “to” field.

Then right-click on that address, and select “view contact details”

Then click the settings wheel to go to email settings, and select “show advanced PGP settings”

Under “public keys”, select “upload” and upload their public key in an .asc format.

Once the key is uploaded, the “encrypt emails” toggle will automatically switch on, and all future emails to that contact will automatically be protected with PGP. You can turn that off at any time, and also remove or replace the public key.

How do others secure emails to you using PGP?

Super! So you’ve sent an encrypted email to someone using their PGP key. What if they want to send you an email back, will that be automatically end-to-end encrypted (E2EE) using PGP? Not necessarily.

In order for someone to send you an end-to-end encrypted email, they need your public PGP key.

Download your public-private key pair inside Proton

Proton automatically generates a public-private key pair for each address that you have configured inside Proton Mail, and manages encryption inside its own network.

If you want people outside Proton to be able to encrypt messages to you, the first step is to export your public key from your Proton account so you can share it with them.

To do this:

  • Go to Setting
  • Click “All settings”
  • Select “encryption and keys”
  • Under “email encryption keys” you’ll have a dropdown menu of all your email addresses associated with your Proton account. Select the address that you want to export the public key for.
  • Under the “action” column, click “export public key”

It will download as an .asc file, and ask you where you want to save the file.

Normally a PGP key is written in 1s and 0s that your computer can read. The .asc file takes that key and wraps it in readable characters, and it ends up in a format that looks something like this:

Sharing your public key

Now that you’ve downloaded the public key, how do you share it with people so that they can contact you privately? There are several ways.

For @proton.me and @protonmail.com addresses, Proton publishes your public key in its WKD automatically. You don’t have to do anything.

For custom domains configured in Proton Mail, Proton doesn’t host WKD for you. You can publish WKD yourself on your own domain by serving it at a special path on your website. Or you can delegate WKD to a managed service. Or if you don’t want to use WKD at all, you can upload your key to a public keyserver like keys.openpgp.org, which provides another way for mail apps to discover it.

We’re not going to cover those setups in this article. Instead here are simpler ways to share your public key:

1) You can send people your .asc file directly if you want them to be able to encrypt emails to you (be sure to let them know which email address is associated with this key), or you can host this .asc file on your website for people to download.

2) You can open the .asc file in a text editor and copy and paste the key, and then send people this text, or upload the text on your website. This is what I have done:

This way if anyone wants to send me an email more privately, they can do so.

But Proton makes it even easier to share your PGP key: you can opt to automatically attach your public key to every email.

To turn this on:

  1. Go to Settings → Encryption & keys → External PGP settings
  2. Enable
    • Sign external messages
    • Attach public key

Once this is on, every email you send will automatically include your public key file, as a small .asc text file.

This means anyone using a PGP-capable mail client (like Thunderbird, Mailvelope, etc.) can import it immediately, with no manual steps required.

Password-protected emails

Proton also lets you send password-protected emails, so even if the other person doesn’t use PGP you can still keep the contents private. This isn’t PGP -- Proton encrypts the message and attachments in your browser and the recipient gets a link to a secure viewing page. They enter a password you share separately to open it. Their provider (like Gmail) only sees a notification email with a link, not the message itself. You can add a password hint, and the message expires after a set time (28 days by default).

The bottom line

Email privacy doesn’t have to be painful. Proton hides the complexity by adding a password option, or automating a lot of the PGP process for you: it automatically looks up recipients’ keys, encrypts your messages, and makes your key easy for others to use when they reply.

As Phil Zimmermann, the creator of PGP, explained in Why I Wrote PGP:

“PGP empowers people to take their privacy into their own hands. There has been a growing social need for it. That’s why I wrote it".

We’re honored to have Mr. Zimmermann on our board of advisors at Ludlow Institute.

Pioneers like him fought hard so we could protect our privacy. It’s on us to use the tools they gave us.

 

Yours in privacy,
Naomi

Naomi Brockwell is a privacy advocacy and professional speaker, MC, interviewer, producer, podcaster, specialising in blockchain, cryptocurrency and economics. She runs the NBTV channel on Rumble.