The testing company 23andMe has filed for bankruptcy – and now users are being warned that their DNA data could be resold. The California Attorney General and privacy experts are urging consumers to delete their information immediately to protect themselves.
23andMe is a US company that offers genetic testing to customers. It sends DNA through saliva samples, which are then analyzed to provide information such as heredity and origin.
The company has now announced that it has filed for bankruptcy to sell its assets. With the bankruptcy filing, the California Attorney General urged users to delete their data immediately or risk having it sold.
– I remind Californians to consider invoking their rights and directing 23andMe to delete their data and destroy any samples of genetic material held by the company, he said in a statement.
The 23andMe privacy policy reads: “If we are involved in a bankruptcy, merger, acquisition, reorganization, or sale of assets, your Personal Information may be accessed, sold or transferred as part of that transaction“.
“Delete, delete, delete”
The company has around 15 million people’s DNA in its databases and experts say the situation represents a privacy nightmare that could have cascading effects. A large number of similar services have flourished over the years, such as Ancestry and FamilyTreeDNA, and the uncertainty surrounding 23andMe’s data also highlights the risks of any genetic testing service.
– The DNA data could be used to discern your relatives and ancestry, unearth family secrets, and reveal clues about diseases you have or could be predisposed to. If the data makes its way to certain insurers, they may deny you coverage or charge you more for life, disability, or long-term care insurance because of your genetics, Ginny Fahs, director of product development for Consumer Reports Innovation Lab told The Washington Post, continuing:
– This is some of the most precious data that exists about you; you’re right to be concerned that it may be up for grabs.
Sara Geoghegan, senior advisor at the Electronic Privacy Information Center, also warns about user privacy and urges consumers to delete their data immediately.
– The fact that consumers can’t know all of the ways their data could be used is very harmful, says Geoghegan. Delete, delete, delete. Consumers should delete their accounts while they still can.